Issue Briefs | Jan 25, 2024

Collection of Self-Reported Disability Data in Medicaid Applications: A Fifty-State Review of the Current Landscape

Emily Zylla and Elizabeth Lukanen, SHADAC

Very little is known about people who self-identify as having a disability within the Medicaid program who are not a part of the group that qualifies for benefits through a disability-related eligibility category. Collecting better demographic data about the types of disabilities Medicaid enrollees experience is vitally important so that inequities can be identified, and resources and programs can be tailored appropriately. This issue brief provides an overview of current disability data collection standards and documents how states are collecting self-reported disability information on their Medicaid applications.